The International MLD Registry is an open organization. Membership is subject to approval by the current members but will not be unduly withheld to those scientists a, doctors, and family organizations having a direct impact and contribution to MLD research.

The initial members (October 2007) of the International MLD Registry Consortium are:

• Scientific Members:
  • Patrick Aubourg, Paris, France
  • Nicole Baumann, Paris, France
  • Lawrence Charnas, Minneapolis, US
  • Carlo Dionisi-Vici, Roma, Italy
  • Florian Eichler, Boston, Massachusetts
  • Maria Escolar, Chapel Hill, US
  • Yoshikatsu Eto, Tokio, Japan
  • Volkmar Gieselmann, Bonn, Germany
  • Alfried Kohlschütter, Hamburg, Germany
  • Fernando Kok, São Paulo, Brazil
  • Ingeborg Krägeloh-Mann, Tübingen, Germany
  • Frederic Sedel, Paris, France
  • SakkuBai Naidu, Baltimore, US
  • Charles Peters, Kansas City, US
  • Maria Sessa, Milano, Italy
  • Marjo van der Knaap, Amsterdam, The Netherlands
• Associate Members:
  • Cristiane Domingos, Pela Vida, Brazil
  • William Kintner, ULF, De Kalb, US
  • Paula Brazeal, ULF, De Kalb, US
  • Dean Suhr, MLD Foundation, Portland, US
  • Teryn Suhr, MLD Foundation, Portland, US